Hearts 4 Kyra

A little girl's courageous battle with juvenile dermatomyositis

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Pilot for a Day

Posted by hearts4kyra on July 19, 2010 at 6:12 PM Comments comments (1)

Tom Cruise step aside!  Pilot Kyra "Princess" Furukawa got her wings and clearance to fly as an honorary member of the 535 Airlift Squadron stationed at Hickam AFB on Friday July 16, 2010.  From a flight suit just her size (with all the patches), to a tour of the MWD (Military Working Dogs) kennels and facilities, wearing night vision goggles, sitting in the cockpit of a C-17 and working the rear bay ramp, to flying over Honolulu in a simulator and meeting the Commander.  What an experience.  So much thanks to Patty at Occupational Therapy and Lt. Chris for all that they did to make this such a memorable event. 

Please help the Cure JM Foundation

Posted by hearts4kyra on July 5, 2010 at 4:24 PM Comments comments (3)

The Cure JM Foundation has entered the Pepsi Refresh Project to win a $250,000

research grant. WE ARE NOW IN 16th PLACE, but we need to be in the top 2 to

receive the grant. SO WE NEED YOUR VOTE, and your friends' votes!! You can vote

every day through July 31st. It will only take a minute of your time, but it

could change children's lives forever.

 

HOW TO VOTE

Please go to: http://www.refresheverything.com/makejmamemory to vote for Cure

JM. Click on the grey button that says Vote for this idea. You will be

prompted to sign-in. It only takes a minute to register, and after that, click

again on Vote for this idea The Pepsi site will let you know that your vote

went through.

For the rest of the month, you will follow the same process; although it will be

faster because you’ve already registered. You will always be prompted to

sign-in, but this only requires your email address and your selected Pepsi

Refresh password. You can vote EVERY DAY through July 31st for Cure JM….and

each family member (age 13 or over) can vote too.

 

SPREAD THE WORD

Please spread the word to family, friends and colleagues. Reach out to at least

20 friends to ensure they vote once a day, EVERY DAY, until July 31st. Each

family member (age 13 or older) can vote from the same email address (or

different email address). Social media, such as Facebook, is also a great tool

for spreading the word. Flyers and other promotional materials are also

available at www.curejm.org

 

JULY 4th WEEKEND

Make plans to take your computer to your 4th of July events and ask your friends

and family to vote for Cure JM. They can all register and vote from your

computer. (They can enter their own email address and create a password from

your computer). Remind them to vote EVERY DAY THROUGH JULY 31st.

Cure JM desperately needs this grant to continue funding our research centers

and to ultimately find a CURE.

Thanks for your support!

Christmas with the Aloha 5-0 Line Dancing Club of Hawaii

Posted by hearts4kyra on January 5, 2010 at 5:03 PM Comments comments (0)

Tuesday December 22, 2009

We had a Christmas party with the Aloha 5-0 Line Dancing Club at the Treetops Resturant in Manoa today, and it was a blast.  The entire group was so nice to all of us and treated us like royalty.  We all had so much fun meeting everyone and dancing.  They were all so very generous and gave so much.  We would like to express all of our gratitude for all of the wonderful gifts for the girls and all of the extra goodies that were packed especially for us.  Mahalo Nui Loa!!!

Dolphin Adventure

Posted by hearts4kyra on January 5, 2010 at 1:55 PM Comments comments (0)

Thursday December 17, 2009

Today we were fortunate enough to be invited by the Kapiolani Medical Center for Women and Children's Rehabilitation Center to Sea Life Park to experience it's Dolphin Discovery tour.  Kyra was one of the few lucky kids to take part in this pilot program that allows kids from the Rehab Department to encounter and interact with these friendly animals from the sea.  Kyra as well as Sierra and Dad had a great time in the water while Mom stayed on the side and took all the pictures as keepsakes.  Check out some of the amazing shots in the "Photo" section.

 

The Kapolei Christmas Light Parade

Posted by hearts4kyra on December 13, 2009 at 3:11 PM Comments comments (0)

Saturday December 12, 2009

Kyra, Tracy and Sierra had the times of their lives when they were chosen to ride aboard the Target Sleigh during the Annual Kapolei Christmas Light Parade.  It was so great to see Kyra as she smiled and waved to the thousands of people that had lined the streets.  Much mahalo to Jon and Geraine as well as the entire team at Target for making our ohana feel so special and loved.

                  Kyra, Jon a.k.a. "Da Boss" at Target Kapolei and Sierra

A special drawing for Kapiolani Hospital

Posted by hearts4kyra on December 8, 2009 at 2:24 PM Comments comments (1)

Monday December 7, 2009

Kyra attended a special ceremony today to honor her along with three other children for their winning drawings for Kapiolani Hospital's Christmas Card design.  Her design will be on the cover on one of four Christmas cards that get sent out to various people and organizations by the hospital.  It was a real honor and treat for Kyra.  She captures the theme which was "Christmas in Hawaii" in her beautiful drawing below.

 

 

                                    Christmas in Hawaii by Kyra Furukawa

 

 

                                              A short message from the hospital

 

                                                 Our little angel the artist

WE GOT THERAPY!

Posted by hearts4kyra on December 8, 2009 at 2:14 PM Comments comments (0)

Friday November 27, 2009

Kyra resumed her p/t and for the first time since September her o/t.  She has been given 6 sessions of each until the end of the year by HMSA.  We hope that this will be enough to get her back to her condition before she got sick.  She continues to improve each and every day.  Way to go Kyra!

Letters from Washington D.C.

Posted by hearts4kyra on December 1, 2009 at 2:12 PM Comments comments (0)

Thursday November 19, 2009

In early October we sent out some e-mails to our leaders in Washington, telling them about Kyra's remarkable story, and some of the struggles we have encoutered through it all with regards to health insurance.  Senators Daniel Akaka and Daniel Inouye responded with heartfelt letters for Kyra in her recovery.  Congressman Neil Abercrombie wrote this email to us:

Reply from Congressman Neil Abercrombie

Thu, November 19, 2009 11:47:26 AMFrom: Congressman Neil Abercrombie Add to Contacts

To: [email protected]

--------------------------------------------------------------------------------

Dear Mr. Furukawa:

Thank you for contacting me to share with me your daughter's story and to express your support for protecting children's health care. I appreciate hearing from you on this matter.

As you may know, in the House health reform bill, H.R. 3962, essential services for children are required in all insurance plans in the national health exchange. Benefits such as well baby and well child care, dental care, vision, and hearing services, equipment, and supplies, at least for children under 21 years of age, will be covered by insurance plans. Furthermore, health reform will help control costs for families. It will ensure preventive care is free for all insured Americans, annual and lifetime limits on benefits are eliminated, and to prevent bankruptcies, a new cap will be set on what families pay out of pocket annually for health care.

I will be monitoring the various health reform bills to ensure that children's health care is promoted and protected. Again, mahalo for sharing your views on this matter. Please do not hesitate to contact me if I can be of further assistance.

Sincerely,

Neil Abercrombie

Member of Congress

Mahalo again for contacting me. As your Representative in the United States Congress, it is a privilege and an honor to serve you.

 

 

 

 

 

HMSA denies Kyra...AGAIN!

Posted by hearts4kyra on November 25, 2009 at 1:32 PM Comments comments (0)

Tuesday November 24, 2009

They did it again!  HMSA denied Kyra anymore p/t for the upcoming month of December.  This means that any therapy that we choose to have will be out of pocket...$400 per hour.  Kyra is doing so much better that we can't stop now, no matter how much it cost.  We will just have to find a way to do it, even if it's only once a week.  We are currently seeking an alternative with the doctor that Kyra sees for her spine to figure out if we can get therapy through his diagnosis.  We will keep you posted on any news. 

Back pains

Posted by hearts4kyra on November 14, 2009 at 11:53 AM Comments comments (1)

Monday November 9, 2009

For about a month now Kyra has complained from time to time about her back being sore.  We brought this to the attention of her doctor and an x-ray was taken of her back.  We were told that Kyra has a compression fracture of her spine probably as a result of the bones in her back getting soft from the steroids.  She was seen by an orthopedic surgeon and told that in time it will probably get better.  For now we will monitor her posture for any signs that her back is curving too far forward. 


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