Hearts 4 Kyra

A little girl's courageous battle with juvenile dermatomyositis

Blog

view:  full / summary

Pilot for a Day

Posted by hearts4kyra on July 19, 2010 at 6:12 PM Comments comments (1)

Tom Cruise step aside!  Pilot Kyra "Princess" Furukawa got her wings and clearance to fly as an honorary member of the 535 Airlift Squadron stationed at Hickam AFB on Friday July 16, 2010.  From a flight suit just her size (with all the patches), to a tour of the MWD (Military Working Dogs) kennels and facilities, wearing night vision goggles, sitting in the cockpit of a C-17 and working the rear bay ramp, to flying over Honolulu in a simulator and meeting the Command...

Read Full Post »

Please help the Cure JM Foundation

Posted by hearts4kyra on July 5, 2010 at 4:24 PM Comments comments (3)

The Cure JM Foundation has entered the Pepsi Refresh Project to win a $250,000

research grant. WE ARE NOW IN 16th PLACE, but we need to be in the top 2 to

receive the grant. SO WE NEED YOUR VOTE, and your friends' votes!! You can vote

every day through July 31st. It will only take a minute of your time, but it

could change children's lives forever.

 

HOW TO VOTE

Please go to:

Read Full Post »

Christmas with the Aloha 5-0 Line Dancing Club of Hawaii

Posted by hearts4kyra on January 5, 2010 at 5:03 PM Comments comments (0)

Tuesday December 22, 2009

We had a Christmas party with the Aloha 5-0 Line Dancing Club at the Treetops Resturant in Manoa today, and it was a blast.  The entire group was so nice to all of us and treated us like royalty.  We all had so much fun meeting everyone and dancing.  They were all so very generous and gave so much.  We would like to express all of our gratitude for all of the wonderful gifts f...

Read Full Post »

Dolphin Adventure

Posted by hearts4kyra on January 5, 2010 at 1:55 PM Comments comments (0)

Thursday December 17, 2009

Today we were fortunate enough to be invited by the Kapiolani Medical Center for Women and Children's Rehabilitation Center to Sea Life Park to experience it's Dolphin Discovery tour.  Kyra was one of the few lucky kids to take part in this pilot program that allows kids from the Rehab Department to encounter and interact with these friendly animals from the sea.  Kyra as well as Sierr...

Read Full Post »

The Kapolei Christmas Light Parade

Posted by hearts4kyra on December 13, 2009 at 3:11 PM Comments comments (0)

Saturday December 12, 2009

Kyra, Tracy and Sierra had the times of their lives when they were chosen to ride aboard the Target Sleigh during the Annual Kapolei Christmas Light Parade.  It was so great to see Kyra as she smiled and waved to the thousands of people that had lined the streets.  Much mahalo to Jon and Geraine as well as the entire team at Target for making our ohana feel so special and loved....

Read Full Post »

A special drawing for Kapiolani Hospital

Posted by hearts4kyra on December 8, 2009 at 2:24 PM Comments comments (1)

Monday December 7, 2009

Kyra attended a special ceremony today to honor her along with three other children for their winning drawings for Kapiolani Hospital's Christmas Card design.  Her design will be on the cover on one of four Christmas cards that get sent out to various people and organizations by the hospital.  It was a real honor and treat for Kyra.  She captures the theme which was "Christmas in Haw...

Read Full Post »

WE GOT THERAPY!

Posted by hearts4kyra on December 8, 2009 at 2:14 PM Comments comments (0)

Friday November 27, 2009

Kyra resumed her p/t and for the first time since September her o/t.  She has been given 6 sessions of each until the end of the year by HMSA.  We hope that this will be enough to get her back to her condition before she got sick.  She continues to improve each and every day.  Way to go Kyra!

Letters from Washington D.C.

Posted by hearts4kyra on December 1, 2009 at 2:12 PM Comments comments (0)

Thursday November 19, 2009

In early October we sent out some e-mails to our leaders in Washington, telling them about Kyra's remarkable story, and some of the struggles we have encoutered through it all with regards to health insurance.  Senators Daniel Akaka and Daniel Inouye responded with heartfelt letters for Kyra in her recovery.  Congressman Neil Abercrombie wrote this email to u...

Read Full Post »

HMSA denies Kyra...AGAIN!

Posted by hearts4kyra on November 25, 2009 at 1:32 PM Comments comments (0)

Tuesday November 24, 2009

They did it again!  HMSA denied Kyra anymore p/t for the upcoming month of December.  This means that any therapy that we choose to have will be out of pocket...$400 per hour.  Kyra is doing so much better that we can't stop now, no matter how much it cost.  We will just have to find a way to do it, even if it's only once a week.  We are currently seeking an alternative w...

Read Full Post »

Back pains

Posted by hearts4kyra on November 14, 2009 at 11:53 AM Comments comments (1)

Monday November 9, 2009

For about a month now Kyra has complained from time to time about her back being sore.  We brought this to the attention of her doctor and an x-ray was taken of her back.  We were told that Kyra has a compression fracture of her spine probably as a result of the bones in her back getting soft from the steroids.  She was seen by an orthopedic surgeon and told that in time it will prob...

Read Full Post »

Rss_feed