Joined Sep 4 2009
My granddaughter was diagnosed with JDM in 2000. I'm a cofounder and past chairman of Cure JM Foundation, and coeditor of "Myositis and You" A Guide to Juvenile Dermatomyositis for Patients, Families and Healthcare Providers". I currently serve on Cure JM's Advisory Council.
My purpose in life is to do everything possible to help find a cure for juvenile myositis.