Hearts 4 Kyra

A little girl's courageous battle with juvenile dermatomyositis

10 weeks of torture...a long road ahead

 

 As a healthy 4 year old, Kyra had no worries in the world.  Looking forward to summer vacation, we soon realized that something was very wrong.  At first we noticed a slight rash on her skin and her complaints about her legs being sore.  We took her in early May 2009 to the doctor where she was diagnosed with contracting the Fifth disease, a parvo-virus that typically lasts for 7-10 days.  However in Kyra's case, it went well past that.  She continued to complain about pain in her legs until it got so bad that she could no longer stand on her own.  Week after week we would take her to the doctor's office and we could not determine what was going on with her.  She continued to get weaker and weaker with each passing day.  Finally in late June we took her to the E.R. and she was admitted for several days.  Tests were performed to try and determine what was going on with her, and to our surprise, no one could come up with anything conclusive.  A biopsy was performed and the sample was sent to Stanford for testing.  A few days later she was readmitted to the hospital because she was no longer eating regularly and was losing weight.  As a result, more tests were performed (CT Scan, MRI... and many blood tests).  Ten days later she was released from the hospital with a feeding tube still in her.  Our lives now revolve around feedings, medications, and therapy.  Despite all that has happened, we are so thankful for such an outpouring of love and support from all over the world that words cannot begin to express our thanks and gratitude.  We know that through the power of prayer with God, Jesus and in Kyra's case, "the princess", they will all help her get better.  On her road to recovery she has shown her artistic side by drawing many pictures of hearts.  Her calling card has been a picture of a heart with the number "four" in it to symbolize her age.  This is where the name "hearts 4 Kyra" was embraced.  Please put Kyra in your prayers and help us lift her from this debilitating state.  Don't forget to sign the guest book or email us. 

 

 

 

Mahalo for all your love and support